Our mission at the Neuromuscular Disease Foundation
Our mission at the Neuromuscular Disease Foundation
is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure.
NDF is governed by a rotating Board of Directors, managed by its CEO, advised by our Scientific Advisory and other committees and supported by staff and volunteers. To review our program impact year over year, please see our Annual and Financial Reports.
Keywords: Neuromuscular, Disease, Foundation, Cure, GNEM, GNE Myopathy, The International Gene Therapy Development Program, IGTDP, NDF,